My Body Isn’t Mine Anymore

There was a time when my body felt like me.

Not perfect. Not always kind. But familiar. Private. Mine.

Now it feels borrowed.

My body belongs to appointment times and infusion chairs.
To lab results and scans and numbers I don’t get to interpret for myself.
To hands that touch without asking because asking would slow things down.

Some days it feels like my body is a shared space.

Doctors. Nurses. Techs. Schedulers. Insurance codes. Treatment plans.
Everyone has access. Everyone has an opinion. Everyone needs something from it.

Except me.

And somewhere in all of that, I started to feel unfamiliar to myself.

I catch my reflection and hesitate—not because I look different, but because I don’t feel like the person looking back. My face is mine. My name is mine. But the connection feels thin, like it could snap if I tug too hard.

I don’t move the way I used to.
I don’t think the way I used to.
I don’t trust my body’s signals the way I once did.

I hesitate before plans. I measure energy like it’s currency. I second-guess sensations that used to be background noise.

Is this pain normal?
Is this fatigue real or just me being weak?
Is this fear intuition or anxiety?

I don’t always know anymore.

My body isn’t a home right now.
It’s a project.

I’ve learned new language for it.
“Side effects.”
“Tolerance.”
“Response.”
“Progression.”

Words that sound neutral but live loudly inside me.

There’s grief in this that’s hard to explain to people who haven’t lived it.

It’s not just about pain or exhaustion.
It’s about recognition.

About waking up and realizing the person you were before this would barely recognize your days now.
About feeling like your body has rewritten the rules without consulting the version of you that existed before cancer.

I grieve her sometimes.

The version of me who didn’t plan exits.
Who didn’t need recovery days for normal life.
Who didn’t flinch at every new sensation.

I’m grateful to be treated.
I’m grateful for care.
I’m grateful for medicine.

And I still miss myself.

Some days I look at myself and think, I live here, but I don’t decide much.

That doesn’t mean I’ve given up.
It means I’m learning how to exist inside a body that feels unfamiliar—without abandoning myself completely.

If you’re reading this and quietly nodding, I want you to know:

You’re not weak for feeling disconnected from yourself.
You’re not dramatic.
You’re not ungrateful.

Not recognizing yourself is part of this.
Losing ownership of your body is a loss.
Even when treatment is working.
Even when you’re “doing well.”

You’re allowed to grieve what was taken while still wanting to stay.

I’m still learning how to live inside a body that isn’t fully mine anymore—and how to recognize myself again in small, imperfect ways.

But I’m here.
And today, that counts.


🤍 A note if you’re still here

If this resonated, you’re not alone—even when it feels isolating. Writing this blog is how I make sense of things, but it only matters because people like you are here reading.

If you’d like, you can subscribe so these posts come to you on days when seeking them out feels like too much.

And if you ever want to help keep Mojo & The Mess going—by sharing, supporting, or simply staying—thank you. Truly.

No pressure. Just gratitude.

🖤 Stay messy. Stay human.

One response to “My Body Isn’t Mine Anymore”

  1. mshibdonssciencelab Avatar

    You’re a blessing to your readers, family,& friends! I love you to the moon and beyond, sweet granddaughter! I’m grateful that you are here and for the medical team treating you. Hugs! 🩷

    Like

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I’m Izzy

Welcome to mojo and the mess, This isn’t the blog I ever expected to write — but it’s the one I needed.

I’m Izzy, a twenty-something living (and dying) with terminal cancer, navigating the messy, heartbreaking, unexpectedly beautiful in-between. Here, you’ll find raw reflections, real talk, dog snuggles (shoutout to Mojo), and the unfiltered truth about what it’s like to face the end of your life before it really got going.

This space is for the ones who’ve felt forgotten, the ones who don’t know what to say, and the ones who are still holding on. It’s not always pretty, but it’s always honest.

Thanks for being here. You’re part of the mess now — and I mean that in the best way.

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