I never thought I’d say this, but sometimes it feels like I’m not dying fast enough for certain people.

There’s this quiet, cruel truth no one warns you about when you’re terminal: people have expectations about how you’re supposed to die. They picture the movie version—diagnosis, a period of struggle, a heartfelt goodbye, and then a neat, tragic ending. But life doesn’t follow a script. It drags. It twists. It leaves you stuck in a body that’s slowly falling apart while the world keeps moving on without you.

And sometimes, you can feel people growing restless.


The Waiting Game No One Talks About

Being terminal means everyone knows where this road ends, but no one knows how many miles are left. It’s like we’re all sitting in the world’s most uncomfortable waiting room. Some people are there with me—holding my hand, bringing me water, making sure I laugh even when it hurts. And then there are others—the ones who are tapping their foot, checking their watch, silently annoyed that my story hasn’t wrapped up yet.

You can see it in the way they stop checking in.
You can hear it in the way they sigh when you mention another appointment.
You can feel it in the silence after you share an update and no one replies.

It’s almost like they expected me to disappear gracefully, quickly, neatly. But I didn’t. I’m still here. And for some people, my survival feels like an inconvenience.


The In-Between Is Its Own Kind of Hell

Living while dying isn’t simple. It isn’t one or the other—it’s both at once. My body is rotting from the inside out. My heart is damaged, my bones ache, my abdomen is a war zone. I can’t live the way I used to, but I also haven’t crossed that final line. I exist in this in-between space where I’m too sick to really live, but too alive to be gone.

And I’ll be honest—it’s brutal. Some days I think maybe leaving quickly would have been easier. At least then no one would be treating me like a TV show that overstayed its welcome. At least then I wouldn’t feel like I’m disappointing people just by hanging on longer than they expected.

But the truth is, I’m still here. I’m still waking up. I’m still loving, laughing, crying, hurting. I’m still finding reasons to hold on, even when it feels unbearable. And that matters.


The Guilt That Eats Me Alive

And while I’m here—stuck in this long, slow unraveling—I carry guilt heavier than my own body.

I feel like a shitty wife, because so much of our marriage is spent with me sick, exhausted, or in pain instead of being the partner I always wanted to be. I feel like a shitty daughter, because my parents have to watch me fade and suffer instead of thriving. I feel like a shitty friend, because I cancel plans, disappear into my illness, and have nothing left to give. I feel like a shitty aunt, because the kids I love so much are going to remember me more for being sick than for the adventures I dreamed of having with them.

I know the people who love me don’t see me that way. But I do. And sometimes, it feels like I’m letting everyone down just by existing in this dragged-out, half-life version of myself.


The Truth No One Wants to Hear

I know some people are tired of my story. They don’t say it out loud, but it shows. They’re tired of the updates, tired of my tears, tired of the way cancer keeps interrupting the version of me they liked better—the healthy one, the fun one, the easy one.

But I’m not here to make this easy for anyone. I’m not dying on your timeline. I’m not going to fold myself neatly into the tragedy box so you can move on comfortably. My existence—no matter how messy, painful, guilty, or prolonged—is still mine.

And if my “taking too long” to die makes someone restless? That’s on them. Not me.


To the Ones Who Feel This Too

If you’re reading this and you know what I mean—if you’ve ever felt like your suffering is dragging on too long for others to stomach—I want you to hear this: you are not an inconvenience. You are not a burden. You are a human being living through something unspeakably hard, and every single day you breathe is yours to claim.

Don’t let anyone make you feel guilty for surviving. Don’t let anyone make you feel like your slow, painful, ongoing existence is less worthy than a quick, cinematic ending.

You’re here. That’s enough.


💌 And to the people who love me for real: thank you. Thank you for never making me feel like I’m “taking too long.” Thank you for sitting with me in this waiting room of a life without tapping your foot. You’re the reason I keep going, even when I wonder if I should stop.

A Word From Mojo 🐾

Hi, it’s me, Mojo. I’ve been listening to Mom pour her heart out, and I need to clear something up: she is not a shitty wife, daughter, friend, or aunt. She is my human. My favorite person. The one who keeps going even when it feels impossible.

I see her cry when she thinks no one’s looking. I see her apologize for being sick, as if this was something she chose. I see her break into pieces, and then somehow gather herself enough to pet me, to smile at me, to love me—even when she feels like she has nothing left to give.

So if anyone thinks she’s “taking too long” to die, too bad. That means I get more time with her. More naps tucked under her arm, more belly rubs, more of her soft voice telling me I’m the goodest boy.

She is not an inconvenience. She is not too much. She is mine.
And until her very last breath, I’m not letting anyone make her feel otherwise.

Now excuse me—I’ve got to go sit on her lap so she remembers she’s still needed.

– Mojo 🐾

13 responses to “Not Dying Fast Enough for Some People”

  1. alwayselectronic06c81330f4 Avatar
    alwayselectronic06c81330f4

    You my girl are everything and my greatest joy. I’m sorry peop

    Like

  2. mshibdonssciencelab Avatar

    I’m so sorry that you have others who aren’t supportive, Isabel Lynne. I’m sorry that you are so sick. My heart hurts for you. And, my heart loves you more than all turtles in the deep blue seas. 🐢🌊 I’m here for you always.

    Like

  3. mshibdonssciencelab Avatar

    I’m so sorry that you have others who aren’t supportive, Isabel Lynne. I’m sorry that you are so sick. My heart hurts for you. And, my heart loves you more than all turtles in the deep blue seas. 🐢🌊 I’m here for you always.

    Like

  4. Danni Steinmeier Avatar
    Danni Steinmeier

    I love you. I wish I could do something/anything for you, to help you, take Mojo for a walk, do the dishes, vac or just sit with you. Unfortunately Dick hasn’t been feeling up to par & the Parkinson’s is doing it’s things with his body. I’m not comfortable leaving him alone. On top of what you are already going through, I wouldn’t worry about the so called friends, if they can only find the time to care & visit is when you were well, they were not a friend. I lost so called friends when I got a new job, lost them when I couldn’t go out drinking with them anymore. Guess what? I don’t miss a one of them. And Beautiful, I sure as Hell do not want you to leave this earth. For one I’m a cry baby & I don’t do death well. So you hang around for as long as you can. I’ll try to do what I can, when I can (you know what I mean). & remember you do have people that love you always & forever.

    LOVE YOU!!!!!

    Liked by 1 person

    1. izzypwbmma Avatar

      Love you mama ♥️♥️♥️♥️♥️♥️

      Like

  5. genuinebutterybe24030086 Avatar
    genuinebutterybe24030086

    Sooooo……

    … An offering of a thought that, certainly is fact, but also simply easier to take on the receiving end…

    The majority of the population is simply inexperienced/uncomfortable with dealing with illness/death. When faced with it, which is part of life… It is a higher anxiety item that they simply try to get through, often doing the best they can giving words, that end up, not caring much sensibility. Whether it’s a group of friends and simply chatting about it, or having to attend a service for somebody that has been lost… Human nature poses the same question to everybody, “you’re going to have to say something… What are you going to say?? Prepare…“. Often it just comes out being a mosh of senseless words, as they try. However, the good intent is there.
    I grew up in a funeral home, and was on my way to taking over the business from my father. A unique childhood that most people can’t even understand if you try to explain it to them. A young life in a small town of loss, sorrow, and tragedies… Right in my own house one after the other. What I say, above… Is true for the 90th percentile of human beings. When you need, just pause and ask yourself, “is there any negative intent meant by what they said/did??“. Immediately, the obvious answer is always, “no“.
    You are loved and supported. Don’t ever forget that. From people close, as well as not so close. Ride this wave the best that you can, you have an entire team behind you 🙂 ❤️

    Liked by 1 person

  6. Shannon Murawski Avatar

    I don’t know you personally, but through your beautifully written blogs, I feel like I do. I’m so deeply sorry you’re having to endure such an unimaginably difficult and unfair chapter in life. Yet through it all, you’ve shown incredible courage and unwavering strength, you’ve become a beacon of light for so many who are lost in their own darkness!

    I’m keeping you and your loved ones in my thoughts and prayers, wishing you healing, peace, and continued strength. Try not to let anyone get you down.
    You deserve every moment, every breath, and all the space and time in the world. I’m truly sorry if you’ve been made to feel otherwise, because that is wrong on every level.

    Please know that even from afar, there are people who care deeply and are rooting for you every step of the way. You are not alone, and your voice, your story, and your resilience matter more than you may ever realize. The ripples will continue to make a difference on this earth for generations<3

    Liked by 1 person

    1. izzypwbmma Avatar

      Thank you so much for your kind words. This blog has been my absolute saving grace and I’m eternally grateful for everyone that I’ve come in touch with through it.

      Like

  7. Abigail Johnston Avatar

    This resonates so strongly — I’ve been living with Stage IV metastatic breast cancer (MBC) since 2017. Eight years in, I’m on my 9th line of treatment and the side effects are only worsening. So many people have opted out of the stress of our life and even family is slow to respond, if at all. It’s those people I’ve met and gotten close to in the MBC community who stick around. And those friends, worth their weight in gold and diamonds.

    Like

    1. izzypwbmma Avatar

      Agreed! I’ve lost quantity but gained quality

      Liked by 1 person

  8. Tammy Avatar
    Tammy

    I get this from people too. I get it from myself because I don’t know when anything is going to happen. My brother in law actually told me “I’ll beat this cancer too after telling him it is in my bloodstream and is uncurable”.
    I don’t know how to be anything but strong because I have people depending on me for life’s necessities. I want to stop being dependable and live my life, however much I have left the way I want it to go.

    Liked by 1 person

  9. Christy Lauriano Avatar

    Than you for sharing your journey. My journey has some similarities however, I don’t look at myself like that. I claim healing in the name of Jesus. I say I’m healed, I think like I’m healed I talk like I’m healed no matter what the scans or the doctors say. I believe this way of thinking has saved my life. I know things are happening differently in my body therefore I take my meds, check my blood, see my oncologist, got sober and this year I will celebrate 11 years alive after a stage 4 diagnosis.

    yes my partner left me, yes I’m human and feel uncertain at times but once I remind myself who I am I feel better. I’m the child of a king and I will love a long healthy life. Call it with, call it despite metastatic breast cancer call it whatever you want. Not everyone will care not everyone has the type of compassion we need but we have that warrior within that shines through despite this storm.

    Liked by 1 person

  10. Hospice Nurse Jody Avatar
    Hospice Nurse Jody

    I am a hospice nurse and I get asked questions related to this all of the time. “How long do they have/ how long do I have?”. Of course they know I’m not psychic but the waiting and not knowing is so hard. I appreciate your analogies of being in a waiting room and on knowing the destination but not how many miles are left on the road. Thank you for sharing your story.

    Liked by 1 person

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I’m Izzy

Welcome to mojo and the mess, This isn’t the blog I ever expected to write — but it’s the one I needed.

I’m Izzy, a twenty-something living (and dying) with terminal cancer, navigating the messy, heartbreaking, unexpectedly beautiful in-between. Here, you’ll find raw reflections, real talk, dog snuggles (shoutout to Mojo), and the unfiltered truth about what it’s like to face the end of your life before it really got going.

This space is for the ones who’ve felt forgotten, the ones who don’t know what to say, and the ones who are still holding on. It’s not always pretty, but it’s always honest.

Thanks for being here. You’re part of the mess now — and I mean that in the best way.

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