Little update because I know I’ve been quieter lately and honestly I’ve just been trying to keep up with everything.
I’m getting ready for another round of Enhertu, Perjeta, and Zoladex this week and I already feel tired going into it. The fatigue lately has been bad enough that it feels hard to explain correctly. Not sleepy. Just heavy. Like my body and brain are both moving slower than they should.
My thyroid has also pretty much stopped working now which apparently explains some of why I’ve felt so off lately too. Freezing all the time. Brain fog. Exhausted no matter how much I sleep. Hair and skin changes again. Half the time I genuinely don’t know what symptom belongs to what anymore.
Cancer.
Treatment.
Brain mets.
Radiation damage.
Hormones.
My thyroid.
Who knows anymore honestly.
The chemo brain has also been awful lately. I lose words constantly now. I’ll stop in the middle of a sentence because my brain just blanks. I walk into rooms and completely forget why I went in there. Sometimes I know exactly what I’m trying to say and still can’t get the words out right. It’s frustrating because it makes me feel scattered all the time.
We’ve also had some changes on scans showing more activity in my brain and spine which explains a lot of the neurological symptoms picking back up lately. More headaches, dizziness, pressure, vision issues, nerve pain, random weird symptoms that are hard to even describe unless you’ve dealt with this kind of stuff before.
So there are going to be some changes to my treatment plan moving forward to try to account for all of that and hopefully keep things under control as much as possible.
I think that’s the hardest part lately. It never really settles down long enough to catch your breath. It’s always another medication, another side effect, another scan, another symptom, another appointment.
Anyway. That’s where things are at right now.
Thank you guys for still being here and checking in on me even when I disappear a little. If you’re new here, you can check the different pages on the site for more of my story, resources for patients, and other blogs for more reading. There’s also a “Keep Mojo & The Mess Going” page for anyone who’s asked how to support everything I do here.
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