There’s a word that floats around cancer circles — scanxiety.

It sounds almost silly at first, like something you’d read on a bumper sticker. But when you live it, you know it’s anything but silly.

The Night Before

Scanxiety is the knot in my stomach the night before a scan. It’s lying in bed, staring at the ceiling, replaying every symptom, every ache, every breath, wondering what’s growing inside me without my permission.

The Hospital

It’s the drive to the hospital, where the world outside is doing normal things — people stopping for coffee, rushing to work, laughing at a podcast — while I’m rehearsing how I’ll handle bad news, trying to breathe like a person who isn’t on fire inside.

It’s the machine itself: the cold table, the IV prick, the way the nurse says, “just hold still.” I want to scream that my whole life has been on hold since this started.

The Waiting

But the worst part? It isn’t the scan. It’s the waiting.

🕒 “Scanxiety isn’t the scan itself — it’s the waiting for what comes next.”

Results trickle in, sometimes at odd hours. A notification dings on my phone, and suddenly I’m holding my breath, fingers trembling as I open the patient portal. Words I barely understand — “lesion,” “progression,” “stable” — become the jury on my future.

And then, even if something looks terrifying, I still have to wait for a doctor to explain it. To confirm or deny whether my entire life is about to change again.

The Truth About Scanxiety

Scanxiety is a second illness. It eats at your peace, your sleep, your ability to just be. And the cruelest part is, it never really ends. There’s always another scan on the calendar, another countdown, another round of waiting.

But here’s what I remind myself: these scans, as much as they terrify me, are also what keep me here. They are the reason I can keep fighting. They give my doctors the chance to see what my body isn’t telling me out loud. They’re the uncomfortable bridge between the life I’m scared of losing and the one I’m still fighting to live.

If You’re Waiting Too

So if you’ve ever sat in that waiting room, heart racing, mind spiraling — I see you. You’re not dramatic. You’re not weak. You’re carrying a weight only people in this world truly understand.

And if you’re reading this while waiting for your own results: you’re not alone in the in-between. I’m right here with you, holding my breath too.

✨ If this post resonated with you, please consider subscribing, sharing, or leaving a comment below. Your support helps me keep writing for the people lost in the mess, the ones who need to know they aren’t alone

One response to “Scanxiety: Living Between Results”

  1. mshibdonssciencelab Avatar

    I see you. I hear you. I can only imagine how much anxiety you’re experiencing. You’re here. You’re helping others with this blog. Love you! Hugs, momma

    Like

Leave a comment

I’m Izzy

Welcome to mojo and the mess, This isn’t the blog I ever expected to write — but it’s the one I needed.

I’m Izzy, a twenty-something living (and dying) with terminal cancer, navigating the messy, heartbreaking, unexpectedly beautiful in-between. Here, you’ll find raw reflections, real talk, dog snuggles (shoutout to Mojo), and the unfiltered truth about what it’s like to face the end of your life before it really got going.

This space is for the ones who’ve felt forgotten, the ones who don’t know what to say, and the ones who are still holding on. It’s not always pretty, but it’s always honest.

Thanks for being here. You’re part of the mess now — and I mean that in the best way.

Let’s connect